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The diving-bell and the butterfly - Jean-Dominique Bauby
The diving-bell and the butterfly
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On December 8, 1995, Jean-Dominique Bauby's life was forever altered when a part of his body he'd never heard of--his brain stem--was rendered inactive. The Diving Bell and the Butterfly, his exquisitely painful memoir, is neither a triumphant account of recovery nor a journey into the abyss of... show more
On December 8, 1995, Jean-Dominique Bauby's life was forever altered when a part of his body he'd never heard of--his brain stem--was rendered inactive. The Diving Bell and the Butterfly, his exquisitely painful memoir, is neither a triumphant account of recovery nor a journey into the abyss of self-pity. Instead, it is a tender testament to the power of language and love. At 43, Bauby was defined by success, wit and charisma. But in the course of a few bewildering minutes, the editor-in-chief of French Elle became a victim of the rare locked-in syndrome. The only way he could express his frustration, however, was by blinking his left eye. The rest of his body could no longer respond. Bauby was determined to escape the paralysis of his diving bell and free the butterflies of his imagination. And with the help of ESA, "a hit parade in which each letter is placed according to the frequency of its use in the French language," Bauby did so. Visitors, and eventually his editor, would read each letter aloud and he would blink at the right one. Slowly--painstakingly-- words, sentences, paragraphs and even this graceful book emerged. Bauby relays the horrors and small graces of his struggle, which range from awaking one day to discover his right eye being sewn shut to realising the significance of Father's Day, a holiday previously absent from his family's "emotional calendar": "Today we spent the whole of the symbolic day together, affirming that even a rough sketch, a shadow, a tiny fragment of a dad is still a dad." The author makes it clear that being locked in doesn't kick open the doors of perception, but The Diving Bell and the Butterfly is nonetheless a celebration of life. Jean Dominique-Bauby died of a heart attack on March 9, 1997, two days after his book was published in France.
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ISBN: 9780003302134 (000330213X)
Publisher: HarperCollins
Pages no: 139
Edition language: English
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Community Reviews
Nithou's Readings
Nithou's Readings rated it
2.0 The Diving Bell and the Butterfly: A Memoir of Life in Death
Même si le fait d'écrire un livre dans cet état relève du défi, je n'ai pas trouvé personnellement énormément d'intérêt au livre, si ce n'est une enfilade de moments sans vraiment de liens ou d'évolution. Bien sûr la condition interpelle, certains moments sont touchants, mais ce n'est pas exactement...
Couscous
Couscous rated it
Endlich hab ich dieses Buch mal aus meinem SuB geklaubt.Beeindruckend selbstironisch beschreibt Bauby seinen "Alltag". Schon allein die Vorstellung, wie er dieses Buch "diktiert" hat, verursacht Beklemmungen bei mir.
Barrita
Barrita rated it
3.5 The Diving Bell and the Butterfly
Aunque ciertamente el libro sería mucho menos poderoso si no se considerada el método con el cuál fue escrito y la historia del autor, eso no significa que perdería todo su mérito si así fuera. El narrador no es particularmente agradable y por momentos es terriblemente chocante. Quizá lo realmente...
rionafaith
rionafaith rated it
The first time I heard about Locked-In Syndrome was on that episode of House. I almost didn't believe it was a real condition at first, it seemed so horrific. Being trapped in your own body like that, with a mind as sharp as ever but unable to control your body or communicate? It's the stuff of nigh...
travelin
travelin rated it
3.0 The Diving Bell and the Butterfly: A Memoir of Life in Death
If he could have just held out a little longer, technology and time enough for the body to heal might have made his condition seem far less tragic.
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