by Emily Rapp
What does it mean to be a success? To be a good parent? To live a meaningful life? Emily Rapp thought she knew the answers when she was pregnant with her first child. But everything changed when nine-month-old Ronan was diagnosed with Tay-Sachs disease, a rare and always-fatal degenerative disorder....
Lois McMaster Bujold, a great writer made no less great by the fact that she writes science-fiction books with covers like this, wrote one of the truest things I have ever read about becoming a parent: “It's a transcendental act. Making life… 'By this act, I bring one death into the world.' One birt...
MY THOUGHTSABSOLUTELY LOVED ITEmily Rapp has survived a birth defect and didn't want to take a chance when she decides to get pregnant. Her and her husband has genetic testing to make sure that her child wouldn't have to go through what she went through as a child. All except that those tests were...
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