The Revised Fundamentals of Caregiving
Benjamin Benjamin has lost virtually everything—his wife, his family, his home, his livelihood. With few options, Ben enrolls in a night class called The Fundamentals of Caregiving, where he is instructed in the art of inserting catheters and avoiding liability, about professionalism, and on how... show more
Benjamin Benjamin has lost virtually everything—his wife, his family, his home, his livelihood. With few options, Ben enrolls in a night class called The Fundamentals of Caregiving, where he is instructed in the art of inserting catheters and avoiding liability, about professionalism, and on how to keep physical and emotional distance between client and provider. But when Ben is assigned to tyrannical nineteen-year-old Trevor, who is in the advanced stages of Duchenne muscular dystrophy, he soon discovers that the endless mnemonics and service plan checklists have done little to prepare him for the reality of caring for a fiercely stubborn, sexually frustrated adolescent with an ax to grind with the world at large. Though begun with mutual misgivings, the relationship between Trev and Ben evolves into a close camaraderie, and the traditional boundaries between patient and caregiver begin to blur as they embark on a road trip to visit Trev’s ailing father. A series of must-see roadside attractions divert them into an impulsive adventure interrupted by one birth, two arrests, a freakish dust storm, and a six-hundred-mile cat-and-mouse pursuit by a mysterious brown Buick Skylark. Bursting with energy, this big-hearted and inspired novel ponders life’s terrible surprises and the heart’s uncanny capacity to mend.
Publish date: August 28th 2012
Publisher: Algonquin Books of Chapel Hill
Pages no: 290
Edition language: English
Very slow. Made a better movie. Check it out on Netflix and save yourself the hours of tedium with this book.
[A Note: I've marked this with a spoiler because at times it refers to things which happen quite far along in the book, but any actual spoilers and specifics have been put in tags]. I have a particular pet hate about books: I really hate misleading blurbs. I hate blurbs which make really good li...
At times an adventurous road novel and others an examination of what it means to be crippled (both in terms of physical disability as well as being stuck in a rut with life), The Revised Fundamentals of Caregiving displays Jonathan Evison's ability to weave together different elements into a complex...
Heartbreaking. Uplifting. Characters I want to find in real life to see what they are doing now. So good. Just read it. You won't be disappointed.
Review first published on my blog: http://memoriesfrombooks.blogspot.com/2012/11/the-revised-fundamentals-of-caregiving.htmlThe Revised Fundamentals of Caregiving is a story about living life in spite of its challenges and difficulties. Trevor is a nineteen year old who suffers from a form of muscu...