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I became interested in this book because as a migraine sufferer who hasn't always had my headaches under control or been able to reliably treat them, I would be shut up in my apartment, in the dark (or as dark as possible when I lived in Arizona), for up to 24 hours. I couldn't read or watch television or go online. I'd sleep but couldn't do so all day. I was bored and felt alone. The next day, when the pain was gone, it was like a first day out of prison or after a long illness. I'd be almost euphoric but also feel vulnerable, as sometimes I'd get rebound headaches. Thankfully, I now have medications both to reduce my headache days and to stop them before they become agonizing.
"Anna" has an extreme sensitivity to light that keeps her inside, in a light-tight room, not for a day but months (even years) at a time. Certain wavelengths affect her more than others, but she can't read, watch television, or use a computer. She listens to audio books, talks on the phone with others who share debilitating chronic conditions, plays mental logic games alone or with her partner or other loved ones. She understandably feels depressed and experiences suicidal ideation.
Yet the book itself is not depressing. There is a humor to her writing, and her strength in dealing with this condition is impressive, encouraging, and inspiring without being maudlin. She's candid about her frustrations, as when she talks with others with chronic conditions that don't limit them in all the ways she is limited and finds herself angry.
She's also a terrific writer; the book feels literary in its prose and structure, which includes shorter chapters ordered thematically and achronologically (in one chapter she goes through the alphabet--one of her mental games--to list all the therapies she's tried and their results). At the end of the book she explains her decisions about how to structure it and even includes a chart indicating periods when she could not leave her home at all and periods of remission when she could go out around dawn and dusk.
Perhaps the most frustrating aspect of Girl in the Dark to read about is the fact that doctors refused to come to her when she could not leave her home. She corresponded with some, but knowing that house calls have been part of the medical profession in the past (and still are in some places--or for the right price) demonstrates their reluctance--not inability--to engage with patients with rare conditions like Anna's. To me, that's inexcusable and shameful.
It took me almost four months to read Pachinko. As I read, I began wondering about my slow pace. My fall semesters are busier, yes, but I still manage to finish most books in what's a timely manner for me. It certainly wasn't because I found the book hard to read in terms of comprehension or engagement. As I got closer to the end, I realized: it was because I was so invested in the characters and storytelling I had to take time to process the intense feelings the novel evoked. There are also regular gaps in time that take place between chapters where characters' situations change significantly; I needed mental space before diving into the story again. I can't think of another novel that required this sort of reading from me.
In addition to Rushdie's The Moor's Last Sigh, Pachinko has served to establish that "family sagas" can engage me, or at least when another culture is involved. Through the family portrayed here, I learned more about Korea, but it never feels like a history lesson. Everything comes from the characters. The novel also provokes thought about national and racial identity.
There were moments I dreaded, as with the return of a less sympathetic character, though not in a way that made me dislike the novel or its author. There were moments that shocked me to the point of gasping. There are many scenes that easily and vividly come to mind when I recall my reading, which I finished more than a month ago.
I would love to teach this novel. I have the feeling I may reread it some day, regardless. For me, that's a rarity, a compliment, and a sign of deep gratitude.
The Book of Kindly Deaths is currently free for the Kindle version. If you like MG Fantasy I highly suggest you grab this one.
The blurb: Eliza Winter's whole world is turned upside down when she discovers a hidden room in her missing grandfather's sprawling Gothic house. Inside the room, below a stained glass window where moonlight shines no matter the hour, waits The Book of Kindly Deaths.
Desperate for clues for grandfather’s whereabouts, Eliza opens the book of ominous, enchanted tales and soon discovers that nothing is what it seems, and that sometimes fairy tales are true...
When a sinister man claiming to be a book collector arrives at the house, Eliza realizes there's far more at stake than she could have ever imagined.
Now Eliza must battle her darkest fears to save her family from the book's guardian, the terrifying ghoul Grim Shivers. Soon she is forced to travel into the heart of the Grimwytch, a haunted world of terrifying monsters where it's forever midnight.
My review:
2 Cups original imagination from an obvious talent
1 Cup Grimm’s Fairy Tales
½ Cup Incorrigible children like those from Charlie and the Chocolate Factory or Mrs. Piggle-Wiggle
1 pinch each disgusting, gross and weird
Fold in one plucky heroine, one missing grandfather, and one very mysteriously creepy book
Season with atmospheric description and deliciously creepy writing
Mix together and sprinkle lightly with gruesome details.
"On a desk in the room with the stained glass windows sat a book.
It was a thick volume with a worn and cracked black cover showing a gold symbol, a rectangle within two circles that sparkled and flickered as if teased by ghostly fingers. Voices whispered from inside the book, growing in volume, a few human, a few not."
Poor Eliza has a dreary mother, one of those practical sorts who doesn't allow things like imagination and curiosity. I already know I don't like her much. But perhaps she does have reasons for this sad flaw.
Twelve year old Eliza has come with her parents to clean out her grandfather's house and catalog things of value. As her grandfather is missing this seems a bit odd and perhaps slightly premature.
As Eliza reads some of the stories in The Book of Kindly Deaths there are clues these might not be simply stories. Including a strange memory she has of the last visit to her grandparent’s home six years before when she was only six.
"The phantom of a forgotten memory crossed her mind. A ghost of an event that had occurred the last time she was at this house. Although the recollection was fleeting, she still felt an icy sting of dread."
After Eliza, and we the readers, are treated to some tales from The Book of Kindly Deaths, where we learn a bit about the denizens of a place full of nightmarish creatures called Grimwytch, Eliza comes to be in immediate danger and finds herself in Grimwytch. There she finds both villains and allies, and learns what happened to her grandfather.
This book has that dark fairytale vibe, and stories within the story. The writing is descriptive and deliciously creepy.
There are a few mildly gruesome bits, but nothing I’d hesitate a middle grade reader reading, as long as they enjoy dark and creepy stories. Young people who delight in spooky tales will eat this one up.
I also think people older than Middle Grade will enjoy this one. I’m an adult and I sure did. I very much hope there are more stories of Eliza to come.